Simon update

Good report.

The cardiologist did his echo cardiagram and Simon's heart is improving greatly. His heart was pumping @ 15 percent last night but is now at 45 - 50. Normal is around 60 percent. Heart size and function are good. They removed 2 of the 4 heart medicines. They believe he does not have congenital heart disease. This is very encouraging.

He was very acidotic when he first was admitted. His acid levels are now normal. The original high acid levels had alot to do with his reduced heart function.

They are checking for infection but it will take 2 days for tests. However, if it was an infection he would not have improved so quickly. His color and reaction to stimulous is greatly improved. There are some infections that cause the symptoms he had. They are the kind that cannot be treated but that the body will throw off with support.

Head scans did not show evidence of damage. They were not the highest quality scans, but the fact that he would be so alert if it were not for sedation indicates that the brain is ok.

They are starting some feeding with special stuff (in place of mom's milk) to deal with metabolic possibility. It has something do with with a possible inability to process fats.

They are still checking for metabolic causes. Tests for this take a long time to process (weeks) and is their main suspect. However, there are reasons to think this may not be a problem.

There does not appear to be any risk of returning to the dangerous life-threatening episodes that he had at KCH and Lutheran last night. As a matter of fact, Riley was surprised at how good he looked when he arrived given all he had been through.

We are hopeful. Keep praying.

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Sent from my cell phone