Coming Home Tomorrow

Simon is coming home tomorrow! He responded to the surgery very well. They actually would let him come home today, however, Dean and Summer are not ready yet. They need to make arrangements and get some more practice with the NG tube and with giving Simon his meds.

Dean finally was able to talk with the Metabolic Doc and he said that the name of the disease is pyruvate carboxylase deficiency not pyruvate decarboxylase deficiency. Apparently they are similar deseases.

They have more testing to do, but it looks like it is going to be a matter of getting Simon to the hospital every time he gets sick. As long as they can get an IV and food into him, there should not be the risk or the damage of this first episode.

Good news! Praise God!