Thursday Update

Yesterday Summer told me that Simon took a bottle and ate all of it. They day before he only did half. I hope he continues eating well from the bottle so they can take the NG tube out of his nose. I can't imagine what that must feel like.
The doctors still want to do the biopsy but we are a little unsure why if his heart is doing so well. The biopsy was originally meant to give us an idea of how the muscle in the heart is doing. I am heading down to Rileys today and hope to get a chance to quiz the doctors myself. Again, our greatest concern is the general anesthetic.
They are going to do an EEG today to take a look at his brain activity. If it looks consistent and normal then they will begin to wean him off of the anti-seizure medication (his only remaining daily medication.) Not sure yet when they are planning to do the MRI again.
Tomorrow is Summer's birthday so I am heading down tonight to take her out on the town. The family is going down tomorrow for a party and celebration. It will be nice to celebrate Summer's Birthday and also Simon's great recovery with everyone. Summer's mom (Haley) has been watching our kids for the past two days and will be taking them down to Indy tomorrow. This will be the first time Haley has seen Simon outside of pictures and video. I expect to go through a few boxes of tissues the first hour she sees him and hopefully the tears of joy will begin to dissipate before we run out of boxes:)

Dean