Friday Update

The doctors would like to do some tests on his muscles to see if they are having problems burning fat. They think that this might be what caused his heart to have problems since it is just a big muscle. They want to perform a minor surgery on his leg to take a sample of his leg muscle but we are hesitant due to the trauma he has been through and unsure of the effects anesthesia on his recovering body. We are praying for some wisdom in this area.
They had put Simon back on Dopamine yesterday to help his heart out a little when the tests came back at 35% for his heart functionality. They hope to get him off of that today as we are awaiting his Echo from yesterday.
They put an arterial line in his arm when he first got here last week and they hope to remove that today which means one less cord or line on him.
Thankfully we got a room in the long term Ronald McDonald house. This means we dont have to pack up and move out everyday then move back in at night. The long term place is great and big enough for us to have our kids stay with us. This is a great answer to prayer no only due to the convenience but we have heard that it can take 4 weeks to get in.

Our kids and my parents are coming out today to spend the weekend with us. Actually we are spending the weekend with the kida and my mom need the weekend off so she will be spending the time with Simon.

Thanks,
Dean