Saturday update: Family Reunion

This is from Tom...

Dean and Summer, Tobi and Trey are spending the day together in Indy (at the zoo). Sandi and I are keeping Simon company and spending some time together.

Last night Tobi and Trey visited with Simon and it went very well. I think this was an important step for Tobi.

They took all O2 off of Simon early this morning. Dopomine is off also. He appears to be doing very well. He still is on seizure medication. But he appears to be doing well in this area and hopefully the NeuroDocs will take him off of this soon.

We still have the questions about the cause of all of this and the strength of his heart. They want to take a sample of his leg muscle to see if there is a metabolic problem with his muscles. This would account for the heart situation an help them determine treatment. However, it means Simon goes under anesthetic and the stress that come with this. They scheduled an Echo Cardiogram for Monday and Dean and Summer are waiting on the report from the latest Echo Cardiagram to see if there is any improvement before making a decision.

Please pray for Dean and Summer as they make this decision. The proceedure is scheduled for Monday but they have not given their consent yet.

He had his infant screening done (for the 3rd time). It doesn't indicate that there were any problems that should have been caught earlier. So we are still looking for a metabolic cause. Pray for the Metabolic Specialist that he finds the problem and treatment soon.

[Posted from my cell phone]